An update, I don’t much feel like writing this one but I also know that there are lots of friends who care and I need to let you know what’s going on. I had my 6 monthly scan last week in Liverpool. As usual, my 6 monthly scan was over 7 months after the previous […]

March 14th. I’m not going to forget this date. A year ago from right now, I was recovering from my cranitomy.* Urgh, that was a rough day. Not as rough as you might imagine but fairly rough nevertheless.     In the news today, we learned that Stephen Hawking has died. He and I vague […]

Hi! I’m so sorry I forgot to update you. In summary, I’m feeling pretty good.  I’m full of health and beans and enthusiasm. I have to start with an apology. Firstly, maybe I should never really have written THIS. “So, How are you?” ask very few people since I publicly took the piss out of […]

So the next scan comes in January. Again, with the help of the therapist I began to understand the “Scanxiety” this brings. It’s not that I’m massively worried, I’m pretty sure it won’t be a bad one this time. If we boil down all the scanning, the waiting and the chatting the result will either […]

Life Expectancy and Flossing I avoided getting into this previously, it’s a tough subject matter to tackle. In the landscape of incurable brain cancers my life expectancy is really pretty good. Yes, it’s that “lucky” thing again. I’ve been trying to think of a way of explaining it. I can’t stand the way someone might […]

warning: snotty one I was sad. I went to see a psychotherapist. I’ve nearly always been pretty pleased with my good mental health, especially now as it becomes clear that my physical side is so very flawed. Over the summer, I felt very, very sad. I think my sadness and emotional trauma is pretty much […]

warning snotty one Eggshit Eggshit, brexshit, it’s all shit. Also, I clearly can’t stay away from these puns. Must be the brain injury (and/or my comedy genius is unstoppable) A while ago, my sister mentioned that it might be a bit unfair to miss out all the miserable stuff in my communications. She’s right, it’s […]

warning: snotty one 2016. The year I gave birth to Ivy, my first, my beautiful, my perfect little baby. That’s what 2016 was meant to be about. Instead, 2016 became the year they found a Brain Tumour. My daughter Ivy is 11 months old now. Last week I finished plastering her room. At last, she’s […]

I went for my 3-month scan in June. Another hour in the MRI machine and another big shot of gadolinium juice in the arm. I like to think it’s a bit like the glow-in-the-dark green stuff from the Simpson’s but it’s probably not that fun. Interestingly (*too strong a word?), gadolinium build up from repeat […]