Just a quickie, I’m all checked in at my private suite (side room yay!) in Hotel de Walton. Had some slightly soggy fish and chips but wasn’t that hungry anyway. Dee, Ivy and Corinna have gone off to explore the airbnb flat down the road then they’ll be back for Ivy’s final feed before bed. […]

There’s not much new information, though I seem to have found plenty to say. Do skip ahead if you’re finding it a bit dull, I won’t know and wouldn’t be offended even if I did. I was luckily enough to spend an hour being completely still in the big noisy MRI scanner at the Walton […]

FAQ. And/or the ones you were a bit to nervous to ask and at least one I made up because it’s a good question… Go get a up of tea, it’s a long one!   Are you OK? Your emails seem very cheery? The answer to this question is hidden way down at the bottom […]

Very quick update. I’d like to write more but haven’t found the time and I know lots of caring, lovely people are patiently waiting/worrying and keen to know how it went this week. I didn’t get an appointment at Stoke this week but did go to the Walton Centre in Liverpool. I much preferred it […]

Not much new news yet.  I spoke with the specialist nurse yesterday who didn’t have much positive to say except that we can’t be sure exactly what’s going on until after the surgery and the biopsy results are back. The nurse said “it’s definitely diffuse” this means that the tumour doesn’t have a clear boundary […]

Well I went to see the neurosurgeon in Stoke on Trent on Wednesday and to sum up it’s not particularly good news. He took one look at the scans and was quite clear he didn’t think it was a DNET. Now we can just look back with nostalgia at the good old days when I […]

I wanted to write to you all as I know different friends have had different bits and pieces of information about the goings on in my brain and I think if it was one of you guys going through all this I’d be wanting to know how you’re getting on. It would be nice to […]